"People have just learned they have metastatic disease, and they are really scared. I have been living with metastatic breast cancer for nearly 7 years, and for me, this is a chronic disease."
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For some patients with breast cancer, the day comes when the treatments no longer work, the cancer progresses and the end of life is near. The decision to stop treatment is different for every patient. Some want to try everything available and fight to the last day, while others choose not to accept treatment regimens that may compromise their quality of life without extending it.
The time when treatments stop working is very difficult for the patient, family and friends. Communication is important during this time. Patients should talk to their treatment team and make clear their wishes regarding treatment and end of life care. They also need to talk to loved ones to make sure they understand what is happening and respect decisions regarding active treatment, palliative care and hospice care. In cases where breast cancer is unlikely to be cured or when treatment has stopped working, the patient is advised to have a written plan for end of life care.
Most cancer centers have professional staff, nurses, social workers, psychologists, pain control specialists and others who will work with you and your family to help with both making decisions and creating a treatment plan. Many family members and caregivers who have experienced the death of someone they love recommend having open discussions about treatment issues, as well as personal goals and needs before a person becomes so sick that he or she is unable to participate.
Next: Palliative Care and Hospice Care.
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